15 Best Ataxia Blogs & Websites in 2025

1. Action for A-T

Blog https://actionforat.org/
Action for A-T is a charity that was set up by two parents following their daughter being diagnosed with a rare genetic disorder called Ataxia-Telangiectasia (A-T). Raising money for medical research for Ataxia Telangiectasia (A-T) - rare, neurodegenerative, genetic disease leading to disability and premature death.MORE Email ****@actionforAT.org
Facebook Followers 3.6KTwitter Followers 1.1KInstagram Followers 763 Domain Authority 37 Read Now Get Email Contact Get Influential Bloggers ContactsGet access to 250k active Bloggers in 1500 niche categories.(Export Full Database)Get targeted media contact list in your niche at your fingertips so you can focus on running your campaign.Email us the type of bloggers you want to reach out for your marketing campaign at anuj@feedspot.com Copy email. We'll share blogger's data in an Excel or CSV format.Email us

2. Ataxia UK News

Blog https://www.ataxia.org.uk/latest-news/
Ataxia UK is the national charity for everyone affected by ataxia. We have been running for over forty years. Our mission is to support people affected by ataxia with research, information, welfare grants, campaigning and the opportunity to meet and help others in the same position.MORE Email ****@ataxia.org.uk
Facebook Followers 9.6KTwitter Followers 4.6KInstagram Followers 3.2K Domain Authority 48 Read Now Get Email Contact

3. National Ataxia Foundation Blog

Blog https://www.ataxia.org/blog/
Get Information on Ataxia, its symptoms, treatment, Ataxia research, and stories of people living with Ataxia. National Ataxia Foundation (NAF) is dedicated to improving the lives of persons affected by ataxia through support, education, and research.MORE Email ****@ataxia.org
Facebook Followers 12.7KTwitter Followers 3.1KInstagram Followers 3.6K Domain Authority 55 Read Now Get Email Contact

4. Friedreich's Ataxia News

Blog https://friedreichsataxianews.com/
At Friedreich's Ataxia News, we strive to bring to light the latest science and research pertaining to FA so that patients and their families can access and understand it. Our editorial staff scours clinical trials.gov, PubMed, and other sources to pick up on the most recent FA studies and present their findings in a way that patients can understand.MORE Email ****@bionewsservices.com
Facebook Followers 3.8K Domain Authority 36 Read Now Get Email Contact

5. FARA Blog

Blog https://www.fara.org.au/news
The Friedreich Ataxia Research Association (fara) is a not for profit organisation that supports research into treatments and a cure for Friedreich Ataxia. fara does not receive State or Commonwealth Government support and relies largely on the family and friends of Friedreich Ataxia patients and generous businesses within Australia and New Zealand to fund its research programs.MORE Email ****@fara.org.au
Facebook Followers 1.4KInstagram Followers 1.4K Domain Authority 31 Read Now Get Email Contact

6. Friedreich Ataxia Scientific News

Blog https://friedreichscientificnews.blogspot.com/
Friedreich Ataxia and close related scientific news. Topics related to rare diseases.
Email ****@gmail.com
Facebook Followers 546Twitter Followers 80 Since Dec Domain Authority 12 Read Now Get Email Contact

7. Retrospective Lily Blog

Blog https://retrospectivelily.wordpress.com/blog/
My name is Lily. I'm 25 years old. I have Friedreich's Ataxia and use a wheelchair. This section of my blog is about my disability experience.
Email ****@gmail.com
Facebook Followers 157 Domain Authority 7 Read Now Get Email Contact

8. Fara NZ Blog

Blog https://www.fara.org.nz/blog/
Friedreich Ataxia Research Association New Zealand (FARA NZ) is a charitable organisation set up to improve the quality of life for people diagnosed with FA, by supporting them and their families and to assist the funding of scientific research to treat this rare neurological degenerative condition.MORE Email ****@fara.org.nz
Facebook Followers 314 Domain Authority 5 Read Now Get Email Contact

9. Nature » Spinocerebellar Ataxia

Blog https://www.nature.com/subjects/spinocerebell..
Spinocerebellar ataxia refers to a group of genetic, progressive neurodegenerative disorders of the spine and the cerebellum that can affect balance, coordination and speech. Latest news and research from Nature.com on the topic of Spinocerebellar ataxia.MORE Email ****@nature.com
Facebook Followers 759.3KTwitter Followers 2.6M Domain Authority 94 Read Now Get Email Contact

10. National Ataxia Foundation Blog

Blog https://www.ataxia.org/blog/
Connecting Ataxia families, researchers, clinicians and the community. NAF is a membership supported nonprofit organization established in 1957 to help persons with Ataxia and their families. The Foundation's primary purpose is to support Ataxia research, provide vital programs and services for Ataxia families, and help in the search for a cure.MORE Email ****@ataxia.org
Facebook Followers 12.7KTwitter Followers 3.1K Domain Authority 55 Read Now Get Email Contact

11. Friedreich's Ataxia Research Alliance

Blog https://www.curefa.org/posts/
FARA's Mission is to marshal and focus the resources and relationships needed to cure FA by raising funds for research, promoting public awareness, and aligning scientists, patients, clinicians, government agencies, pharmaceutical companies and other organizations dedicated to curing FA and related diseases.MORE Email ****@curefa.org
Facebook Followers 14.3KTwitter Followers 2.7K Domain Authority 52 Read Now Get Email Contact

12. Friedreich Ataxia Network

Blog https://www.fan.asn.au/
We are FAN, a support- and information-sharing network for anyone impacted by Friedreich Ataxia (FA) FAers, family, carers and friends.
Email ****@fan.asn.au
Twitter Followers 374 Domain Authority 18 Read Now Get Email Contact

13. The Life of Riley's

Blog https://lifeofrileys.org/
Our journey with Friedreichs Ataxia. Our son has recently been diagnosed with Friedreichs Ataxia and Cardiomyopathy. This is an honest blog about our journey as a family.
Facebook Followers 496 Domain Authority 3 Read Now Get Email Contact