50 Best Cystic Fibrosis Blogs and Websites in 2026

1. Cystic Fibrosis News Today

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Description Cystic Fibrosis News Today is a digital news publication dedicated to offering comprehensive daily news coverage of CF. Read the latest Cystic Fibrosis news and articles. Stay informed about approved therapies, new medications and developments to treat CF.MORE Email ****@cysticfibrosisnewstoday.com
Facebook 26KTwitter 5.2KInstagram 9.2K Domain Authority 51 Get Email Contact Read Now Get Popular Blogs Contact listGet access to 250k active Blogs in 1500 niche categories.Get niche category blogs contact list at your fingertips so you can focus on running your campaign.Email us the category of blogs you want to reach out at anuj@feedspot.com Copy email. We'll share blogs list with verified email contacts in an Excel or CSV format.Email us

2. Cystic Fibrosis New Zealand

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Description Cystic Fibrosis New Zealand is the only dedicated organisation caring for the social, emotional and financial needs of the 500 people in NZ who have the condition. CFANZ will optimise quality of life for people with cystic fibrosis and their families; striving for normal life expectancy.MORE Email ****@cfnz.org.nz
Facebook 5.9K Domain Authority 35 Get Email Contact Read Now

3. Emily's Entourage Blog

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Description Emily's Entourage is a nonprofit organization that raises money and awareness to help find a cure for rare mutations of cystic fibrosis, a genetic disorder that generally affects a person's lungs and digestive system. Our goal is to expedite life-saving treatments and a cure for those with nonsense mutations of CF who are waiting with bated and fading breath.MORE Email ****@emilysentourage.org
Facebook 10.3KTwitter 2K Domain Authority 41 Get Email Contact Read Now

4. Continent Chasers

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Description Continent Chasers Wife & Cystic Fibrosis Husband From Poland and Ireland travelling the world 84 countries. Mission is to Visit Each Country on the planet and to highlight Cystic Fibrosis and to show that serious illness doesn't have to stop you following your dreams.MORE Email ****@gmail.com
Facebook 2KTwitter 1.8KInstagram 1.7K Domain Authority 14 Get Email Contact Read Now

5. CF Happens

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Description I am a military wife, bonus mom and happen to have Cystic Fibrosis (CF).I am not a medical expert and this is just my story.
Email ****@yahoo.com
Twitter 32 Domain Authority 6 Get Email Contact Read Now

6. Tim Wotton

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Description Tim Wotton, a Cystic Fibrosis sufferer, has been defying the odds for over 43 years and is sharing his life lessons and experiences. After counting down to the massive 40 milestone in 2011, he is now regularly sharing his trials and tribulations via this blog.MORE Email ****@hotmail.com
Twitter 816 Domain Authority 19 Get Email Contact Read Now

7. Breathe Bravely

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Description A blog about my beautiful life living with Cystic Fibrosis: to educate and help promote awareness and understanding associated with CF.Dedicated to sharing my experiences of the good, the bad, the ugly, and the funny, so that all who so eagerly support the fight against CF, will know how much their love and support truly means.MORE Twitter 218 Domain Authority 18 Get Email Contact Read Now

8. Journal of Cystic Fibrosis

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Description The Journal of Cystic Fibrosis is the official journal of the European Cystic Fibrosis Society. The journal is devoted to promoting the research and treatment of cystic fibrosis. To this end the journal publishes original scientific articles, editorials, case reports, short communications and other information relevant to cystic fibrosis.MORE Email ****@health.qld.gov.au
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9. CF Community Blog

https://www.cff.org/cf-community-blog + Follow Blog
Description The mission of the Cystic Fibrosis Foundation is to cure cystic fibrosis and to provide all people with CF the opportunity to lead long, fulfilling lives by funding research and drug development, partnering with the CF community, and advancing high-quality, specialized care. The CF Community Blog highlights voices from across the CF community, touching on all aspects of life with cystic fibrosis.MORE Email ****@cff.org
Facebook 243.3KTwitter 31.3KInstagram 64.6K Domain Authority 66 Get Email Contact Read Now

10. Cystic Fibrosis Canada Blog

https://cysticfibrosis.ca/blog-hub + Follow Blog
Description Cystic Fibrosis Canada is a national charitable not-for-profit corporation committed to finding a cure for cystic fibrosis (CF). We invest more in life-saving CF research and care than any other non-governmental agency in Canada.MORE Email ****@cysticfibrosis.ca
Facebook 19.5KTwitter 6.3KInstagram 7.1K Domain Authority 53 Get Email Contact Read Now

11. Cat Boogies Dream

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Description I like cats, iced coffee and the color purple. I like reading, writing, making soap and thinking about what's next. I am a double lung transplant patient with cystic fibrosis.
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12. Bright Hope

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Description Strength for today and BRIGHT HOPE for tomorrow! I am a 39-year-old woman with cystic fibrosis. I am also a daugher, sister, wife, mother, teacher and friend. Most importantly I'm God's child. This blog is about my life including the challenges and blessings of living with cystic fibrosis, my faith, my family, and more!MORE Email ****@gmail.com
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13. Cody Dieruf Benefit Foundation

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Description The Cody Dieruf Benefit Foundation was formed in March of 2006 in honor of Cody Dieruf who passed away from Cystic Fibrosis at 23 years old. Uniting communities and families living with Cystic Fibrosis by raising awareness, providing emotional and financial assistance, encouraging health management, and inspiring life experiences.MORE Email ****@breathinisbelievin.org
Facebook 2.1KTwitter 7 Domain Authority 19 Get Email Contact Read Now

14. Cystic Fibrosis Federation Australia

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Description Cystic Fibrosis (CF) is the most common, genetically acquired, life-shortening chronic illness affecting young Australians today. Understand the risks, the effects and how to best live your life.MORE Email ****@cfa.org.au
Facebook 12.4K Domain Authority 45 Get Email Contact Read Now

15. Cystic Fibrosis Kids

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Description CF Kids helps by providing equipment, such as nebulisers, which can be an essential part of a CF Kids daily routine at home, but may not be available because of the NHS budget. We also provide exercise equipment and lessons, plus have a number of other services we offer to families in the Portsmouth and Southampton areas.MORE Email ****@cfkids.org.uk
Facebook 1.5KInstagram 284 Domain Authority 28 Get Email Contact Read Now

16. Cystic Fibrosis s Blog

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Description A worldwide Cystic Fibrosis community combining cultures, nationalities and age groups. The mission of the Cystic Fibrosis Foundation is to cure cystic fibrosis and to provide all people with the disease the opportunity to lead full, productive lives by funding research and drug development, promoting individualized treatment, and ensuring access to high-quality, specialized care.MORE Email ****@cff.org
Facebook 243.3KTwitter 31.3K Domain Authority 34 Get Email Contact Read Now

17. Inspire; to breathe

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Description Blog by Suzanne. Blogging about home, life, living with Cystic Fibrosis, gardening, general love for all things vintage, and reasons why those topics are more interesting than they sound.
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18. Claire's Place Foundation Blog

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Description Claire Wineland is founder of Claire's Place Foundation, a 501c3 committed to helping others living with cystic fibrosis like herself. Our mission is to heighten public awareness about Cystic Fibrosis and improve the quality of life for the families it affects by providing education, life skills, inspiration, and positive support.MORE Email ****@clairesplacefoundation.org
Facebook 34.7KTwitter 19.5KInstagram 110.8K Domain Authority 48 Get Email Contact Read Now

19. IV Solutions blogs

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Description IV Solutions is a full service cystic fibrosis pharmacy that provides home infusion treatments, respiratory inhalation therapies, and specialty CF medications. Since 1986, we've been there to help cystic fibrosis patients along with their families and healthcare providers. We're here to support you through individualized instruction, proactive refill reminders, on-going care coordination.MORE Email ****@maxor.com
Facebook 2.4KTwitter 15 Domain Authority 34 Get Email Contact Read Now

20. Living life breathlessly

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Description Life is not measured by the number of breaths we take, but by the moments that take our breath away.
Email ****@gmail.com
Twitter 1 Domain Authority 20 Get Email Contact Read Now

21. Love to Breathe

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Description Blog by Somer Love, I created Love To Breathe® to educate and raise awareness about Cystic Fibrosis and spread Love whenever I can. I want to change the world... Join my fight!
Email ****@lovetobreathe.com
Facebook 10.4KTwitter 1.6KInstagram 13.3K Domain Authority 13 Get Email Contact Read Now

22. This is Eli

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Description A blog about Eli. A blog about survival - and by that, I mean life! Eli, a boy living cystic fibrosis. We are all about living and ❤️ adventure. I write to shed light on life with CF - and mostly, that means writing about the game of survival called life. We do our best at wellness and nutrition to keep the tribe, and Eli, as healthy as possible.MORE Twitter 389 Domain Authority 19 Get Email Contact Read Now

23. 66 roses

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Description Blog by Erin Moore, I'm just a mom with 3 wonderful kids, two of which are twins, one of which has Cystic Fibrosis, and I want to share my thoughts. This blog, 66 Roses, is dedicated to finding the cure.MORE Email ****@gmail.com
Facebook 358Twitter 2.1K Domain Authority 25 Get Email Contact Read Now

24. CF Roundtable Blog

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Description The purpose of USACFA is to provide a source of information for CF adults regarding the basis, nature and progression of the disease, as well as the latest treatments and research to fight it. It also offers a forum for CF adults to communicate with each other. Our many columnists provide insights on a wide variety of subjects related to CF.MORE Email ****@usacfa.org
Facebook 2.3KTwitter 888 Domain Authority 24 Get Email Contact Read Now

25. Past the Point of No Return

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Description A place for me to record the highs and lows of life on the transplant list, and my new life beyond it. Cystic Fibrosis waited 4years for a double lung transplant and finally recieved the gift of life 10.10.11! All views my own.MORE Email ****@gmail.com
Twitter 3.3K Domain Authority 19 Get Email Contact Read Now

26. JAMIEBUG CF CEPACIA LUNG TRANSPLANT

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Description Jamiebug- I have Cystic Fibrosis with Cepacia...Despite being told by almost every hospital in the country that I was not a candidate for a lung transplant due to Cepacia- I didn't give up and I found the ONE place that took a chance on me! I am almost 3 years post transplant and I feel great! You will learn of her thoughts, feelings and how she got through each day.MORE Email ****@gmail.com
Facebook 123Twitter 54 Domain Authority 12 Get Email Contact Read Now

27. CF Stinks

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Description Having CF Stinks, but that doesn't stop me! I'll share with you a little about myself, my life with Cystic Fibrosis and anything else that crosses my mind.
Facebook 205 Domain Authority 11 Get Email Contact Read Now

28. SaltySouthpaw.com

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Description Why am I the Salty Southpaw? Why I'm Salty - Cystic Fibrosis is a genetic disease where my body has trouble transporting salt. This causes thick mucus in my lungs and body, and my sweat has more salt in it than yours. Southpaw - I am a left-handed baseball player! Baseball and pitching is my passion! Check out my journey with CF.MORE Twitter 6 Domain Authority 9 Get Email Contact Read Now

29. The Unknown Cystic

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Description Leaving a digital record for my family & virtual friends.
Twitter 1K Domain Authority 18 Get Email Contact Read Now

30. Lucky CF Mom

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Description I have the most amazing good luck. 8 years ago, my world came crashing down when my newborn baby was diagnosed with the genetic disease cystic fibrosis. Today, we feel like the most fortunate family in the world because we have Kalydeco! Now my goal is to work toward more personalized research, to help bring the most effective treatment to each and every person living with CF!MORE Twitter 379 Domain Authority 10 Get Email Contact Read Now

31. Two Salty Boys

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Description Two Salty Boys discusses the ride of a lifetime, having two boys that both have CF. You will read about the rollercoaster of life issues on this blog.
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32. The Journey of Faith

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Description Desiring to be more like Christ through the trials and joys of this life. On The Journey of Faith you will read about how a mom and family deal with the fact that they have a child with CF. You will read about the fun and happy times as well as trying times.MORE Domain Authority 10 Get Email Contact Read Now

33. But You Look So Well

https://www.butyoulooksowell.com/ + Follow Blog
Description Cystic Fibrosis blogger Helen Roper is waiting for a Double Lung Transplant. 'But You Look So Well' is the usual reply. She doesn't like writing about herself in the third person! Capturing Helen Roper's journey through Cystic fibrosis whilst waiting for a double lung transplant in the UK with trademark dry humor.MORE Email ****@butyoulooksowell.com
Instagram 1.7K Domain Authority 8 Get Email Contact Read Now

34. *Live*Laugh*Love*Breathe*

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Description Colleen's blog is about how she tries to incorporate Live, Love, Laugh into her daily life with CF.
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35. Joyfully Breathing

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Description A CFer's Joyous Journey Through Life. I hope you enjoy reading about how I live my life as CFer! My dream job is to work with other cystic fibrosis patients as a Registered Dietitian Nutritionist (RDN) to help them gain weight so that they can live a longer, healthier life.MORE Domain Authority 9 Get Email Contact Read Now

36. Inhaling Hope

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Description A blog about mothering despite Cystic Fibrosis.The owner of this blog discusses her journey through life as a wife and mother. However, she has one thing that increases her challenges to these things. She has CF.MORE Email ****@gmail.com
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37. Behind the Smile of a Cystic

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Description My personal spin with Cystic Fibrosis tips, tricks, positive outlooks. All while making my dreams come true! 'Always Smile. I want to encourage everyone with CF young or old to reach for you dreams, no matter how big or small they can be. As long as you have the right attitude in life, your disease will not bring you down!MORE Email ****@gmail.com
Twitter 185 Domain Authority 7 Get Email Contact Read Now

38. Cystic Fibrosis Guernsey Blog

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Description Cystic Fibrosis Guernsey's aim is to give local families and carers friendly support and advice. Local families who suffer with the issues surrounding CF have little or no way of sharing there ups and downs, their problems, we should help each other.MORE Email ****@Cysticfibrosis.org.gg
Facebook 212Twitter 148 Domain Authority 16 Get Email Contact Read Now

39. The So What Life

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Description A blog to inspire members of the CF community to live positively and embrace everything life has to offer. Thriving with a chronic illness, cystic fibrosis.
Email ****@thesowhatlife.com
Facebook 1.3K Domain Authority 11 Get Email Contact Read Now

40. One Breath at a Time - Living with Cystic Fibrosis

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Description A lot of people ask me what made me decide to start writing a blog. I first got the idea after finding out that I might need a transplant. This blog is to raise awareness too, and that has been the biggest blessing I could have asked for. I have people reading my blog and learning about what Cystic Fibrosis is.MORE Domain Authority 10 Get Email Contact Read Now

41. Illness Inspired Words

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Description The one thing that many don't realize about Cystic Fibrosis is how isolating it can be. We are discouraged to spend any quality time together unless we abide by strict infection control protocols. With that being said, many CF'ers and their families have sort of decided to stay away for one another in a best practices effort to not cross contaminate.MORE Email ****@gmail.com
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42. Always Have Hope

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Description Following my life with Cystic fibrosis.
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43. I dream of Daisy

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Description Former civil servant Donna Sim has joined the growing trend of parent bloggers. She takes you on a journery sharing inspirational moments, as well as personal accounts written with a heavy heart about her life battling Cystic Fibrosis and her struggles to conceive her miracle baby Daisy.MORE Facebook 204Twitter 56 Domain Authority 6 Get Email Contact Read Now

44. With Every Breath: My Life with Cystic Fibrosis

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Description Once you choose hope, anything's possible. it's also a good way for me to connect with others in the CF community. Others in my situation may find it comforting to see they aren't alone. Blog by jordan.MORE Domain Authority 8 Get Email Contact Read Now

45. The Transplanted Dad

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Description My life as a father and husband with Cystic Fibrosis and two donated lungs. Here I will share the story of my life with Cystic Fibrosis and the new direction it's headed in following my double lung transplantMORE Facebook 125 Domain Authority 7 Get Email Contact Read Now

46. Tales of Citrus and Salt

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Description When Life Gives you Lemon is published by a mom of a little guy that has CF. You will read about her daily life as well as how to care for a child with CF.
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47. Every Breath Means Hope

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Description This is my life... Cystic Fibrosis. Friends. Family. Music. Animals. Love. Faith. God. Miracles. Dreams. Hope.
Twitter 254 Domain Authority 6 Get Email Contact Read Now

48. Blue-Eyed Breather

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Description Blue Eyed Breather is a blog about a young lady who strives to live a normal life. Emily blogs about the good and the not so good in her life and about her walk with God.
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49. The Salty Cyster

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Description Life with Cystic Fibrosis and other random thoughts along the way.
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50. CF Is Not Forever

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Description Cystic Fibrosis is part of our family now on Earth, but we know that Cystic Fibrosis is not forever, but our family is!
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