50 Best Cystic Fibrosis Blogs to Follow in 2026

1. CF Community Blog

https://www.cff.org/cf-community-blog + Follow Blog
Description The mission of the Cystic Fibrosis Foundation is to cure cystic fibrosis and to provide all people with CF the opportunity to lead long, fulfilling lives by funding research and drug development, partnering with the CF community, and advancing high-quality, specialized care. The CF Community Blog highlights voices from across the CF community, touching on all aspects of life with cystic fibrosis.MORE Email ****@cff.org
Facebook 243.8KTwitter 31.3KInstagram 64.9K Domain Authority 67 Get Email Contact Read Now

2. Journal of Cystic Fibrosis

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Description The Journal of Cystic Fibrosis is the official journal of the European Cystic Fibrosis Society. The journal is devoted to promoting the research and treatment of cystic fibrosis. To this end the journal publishes original scientific articles, editorials, case reports, short communications and other information relevant to cystic fibrosis.MORE Email ****@health.qld.gov.au
Domain Authority 39 Get Email Contact Read Now

3. Cystic Fibrosis Canada Blog

https://cysticfibrosis.ca/blog-hub + Follow Blog
Description Cystic Fibrosis Canada is a national charitable not-for-profit corporation committed to finding a cure for cystic fibrosis (CF). We invest more in life-saving CF research and care than any other non-governmental agency in Canada.MORE Email ****@cysticfibrosis.ca
Facebook 19.8KTwitter 6.3KInstagram 7.2K Domain Authority 52 Get Email Contact Read Now

4. Cystic Fibrosis Federation Australia

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Description Cystic Fibrosis (CF) is the most common, genetically acquired, life-shortening chronic illness affecting young Australians today. Understand the risks, the effects and how to best live your life.MORE Email ****@cfa.org.au
Facebook 12.8K Domain Authority 48 Get Email Contact Read Now

5. Cystic Fibrosis New Zealand

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Description Cystic Fibrosis New Zealand is the only dedicated organisation caring for the social, emotional and financial needs of the 500 people in NZ who have the condition. CFANZ will optimise quality of life for people with cystic fibrosis and their families; striving for normal life expectancy.MORE Email ****@cfnz.org.nz
Facebook 5.9K Domain Authority 36 Get Email Contact Read Now

6. CF Roundtable Blog

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Description The purpose of USACFA is to provide a source of information for CF adults regarding the basis, nature and progression of the disease, as well as the latest treatments and research to fight it. It also offers a forum for CF adults to communicate with each other. Our many columnists provide insights on a wide variety of subjects related to CF.MORE Email ****@usacfa.org
Facebook 2.3KTwitter 888 Domain Authority 35 Get Email Contact Read Now

7. Cystic Fibrosis News Today

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Description Cystic Fibrosis News Today is a digital news publication dedicated to offering comprehensive daily news coverage of CF. Read the latest Cystic Fibrosis news and articles. Stay informed about approved therapies, new medications and developments to treat CF.MORE Email ****@cysticfibrosisnewstoday.com
Facebook 26.6KTwitter 5.2KInstagram 9.3K Domain Authority 54 Get Email Contact Read Now

8. Emily's Entourage Blog

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Description Emily's Entourage is a nonprofit organization that raises money and awareness to help find a cure for rare mutations of cystic fibrosis, a genetic disorder that generally affects a person's lungs and digestive system. Our goal is to expedite life-saving treatments and a cure for those with nonsense mutations of CF who are waiting with bated and fading breath.MORE Email ****@emilysentourage.org
Facebook 10.3KTwitter 2K Domain Authority 41 Get Email Contact Read Now

9. Claire's Place Foundation Blog

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Description Claire Wineland is founder of Claire's Place Foundation, a 501c3 committed to helping others living with cystic fibrosis like herself. Our mission is to heighten public awareness about Cystic Fibrosis and improve the quality of life for the families it affects by providing education, life skills, inspiration, and positive support.MORE Email ****@clairesplacefoundation.org
Facebook 36.7KTwitter 19.5KInstagram 110.2K Domain Authority 48 Get Email Contact Read Now

10. IV Solutions blogs

+ Follow Blog
Description IV Solutions is a full service cystic fibrosis pharmacy that provides home infusion treatments, respiratory inhalation therapies, and specialty CF medications. Since 1986, we've been there to help cystic fibrosis patients along with their families and healthcare providers. We're here to support you through individualized instruction, proactive refill reminders, on-going care coordination.MORE Email ****@maxor.com
Facebook 2.4KTwitter 15 Domain Authority 31 Get Email Contact Read Now

11. Cystic Fibrosis Kids

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Description CF Kids helps by providing equipment, such as nebulisers, which can be an essential part of a CF Kids daily routine at home, but may not be available because of the NHS budget. We also provide exercise equipment and lessons, plus have a number of other services we offer to families in the Portsmouth and Southampton areas.MORE Email ****@cfkids.org.uk
Facebook 1.5KInstagram 285 Domain Authority 15 Get Email Contact Read Now

12. Tim Wotton

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Description Tim Wotton, a Cystic Fibrosis sufferer, has been defying the odds for over 43 years and is sharing his life lessons and experiences. After counting down to the massive 40 milestone in 2011, he is now regularly sharing his trials and tribulations via this blog.MORE Email ****@hotmail.com
Twitter 816 Domain Authority 21 Get Email Contact Read Now

13. Love to Breathe

+ Follow Blog
Description Blog by Somer Love, I created Love To Breathe® to educate and raise awareness about Cystic Fibrosis and spread Love whenever I can. I want to change the world... Join my fight!
Email ****@lovetobreathe.com
Facebook 10.3KTwitter 1.6KInstagram 13.3K Domain Authority 13 Get Email Contact Read Now

14. Breathe Bravely

+ Follow Blog
Description A blog about my beautiful life living with Cystic Fibrosis: to educate and help promote awareness and understanding associated with CF.Dedicated to sharing my experiences of the good, the bad, the ugly, and the funny, so that all who so eagerly support the fight against CF, will know how much their love and support truly means.MORE Twitter 218 Domain Authority 16 Get Email Contact Read Now

15. But You Look So Well

https://www.butyoulooksowell.com/ + Follow Blog
Description Cystic Fibrosis blogger Helen Roper is waiting for a Double Lung Transplant. 'But You Look So Well' is the usual reply. She doesn't like writing about herself in the third person! Capturing Helen Roper's journey through Cystic fibrosis whilst waiting for a double lung transplant in the UK with trademark dry humor.MORE Email ****@butyoulooksowell.com
Instagram 1.6K Domain Authority 5 Get Email Contact Read Now

16. Past the Point of No Return

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Description A place for me to record the highs and lows of life on the transplant list, and my new life beyond it. Cystic Fibrosis waited 4years for a double lung transplant and finally recieved the gift of life 10.10.11! All views my own.MORE Email ****@gmail.com
Twitter 3.3K Domain Authority 17 Get Email Contact Read Now

17. Continent Chasers

+ Follow Blog
Description Continent Chasers Wife & Cystic Fibrosis Husband From Poland and Ireland travelling the world 84 countries. Mission is to Visit Each Country on the planet and to highlight Cystic Fibrosis and to show that serious illness doesn't have to stop you following your dreams.MORE Email ****@gmail.com
Facebook 2KTwitter 1.8KInstagram 1.8K Domain Authority 13 Get Email Contact Read Now

18. 66 roses

+ Follow Blog
Description Blog by Erin Moore, I'm just a mom with 3 wonderful kids, two of which are twins, one of which has Cystic Fibrosis, and I want to share my thoughts. This blog, 66 Roses, is dedicated to finding the cure.MORE Email ****@gmail.com
Facebook 358Twitter 2.1K Domain Authority 26 Get Email Contact Read Now

19. The So What Life Blog

+ Follow Blog
Description A blog to inspire members of the CF community to live positively and embrace everything life has to offer. Thriving with a chronic illness, cystic fibrosis.
Email ****@thesowhatlife.com
Facebook 1.3K Domain Authority 12 Get Email Contact Read Now

20. CF Stinks

+ Follow Blog
Description Having CF Stinks, but that doesn't stop me! I'll share with you a little about myself, my life with Cystic Fibrosis and anything else that crosses my mind.
Facebook 205 Domain Authority 7 Get Email Contact Read Now

21. Lucky CF Mom

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Description I have the most amazing good luck. 8 years ago, my world came crashing down when my newborn baby was diagnosed with the genetic disease cystic fibrosis. Today, we feel like the most fortunate family in the world because we have Kalydeco! Now my goal is to work toward more personalized research, to help bring the most effective treatment to each and every person living with CF!MORE Twitter 379 Domain Authority 10 Get Email Contact Read Now

22. Joyfully Breathing

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Description A CFer's Joyous Journey Through Life. I hope you enjoy reading about how I live my life as CFer! My dream job is to work with other cystic fibrosis patients as a Registered Dietitian Nutritionist (RDN) to help them gain weight so that they can live a longer, healthier life.MORE Domain Authority 9 Get Email Contact Read Now

23. With Every Breath: My Life with Cystic Fibrosis

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Description Once you choose hope, anything's possible. it's also a good way for me to connect with others in the CF community. Others in my situation may find it comforting to see they aren't alone. Blog by jordan.MORE Domain Authority 8 Get Email Contact Read Now

24. Cat Boogies Dream

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Description I like cats, iced coffee and the color purple. I like reading, writing, making soap and thinking about what's next. I am a double lung transplant patient with cystic fibrosis.
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25. Cody Dieruf Benefit Foundation

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Description The Cody Dieruf Benefit Foundation was formed in March of 2006 in honor of Cody Dieruf who passed away from Cystic Fibrosis at 23 years old. Uniting communities and families living with Cystic Fibrosis by raising awareness, providing emotional and financial assistance, encouraging health management, and inspiring life experiences.MORE Email ****@breathinisbelievin.org
Facebook 2.1KTwitter 7 Domain Authority 16 Get Email Contact Read Now

26. This is Eli

+ Follow Blog
Description A blog about Eli. A blog about survival - and by that, I mean life! Eli, a boy living cystic fibrosis. We are all about living and ❤️ adventure. I write to shed light on life with CF - and mostly, that means writing about the game of survival called life. We do our best at wellness and nutrition to keep the tribe, and Eli, as healthy as possible.MORE Twitter 389 Domain Authority 11 Get Email Contact Read Now

27. Cystic Fibrosis s Blog

+ Follow Blog
Description A worldwide Cystic Fibrosis community combining cultures, nationalities and age groups. The mission of the Cystic Fibrosis Foundation is to cure cystic fibrosis and to provide all people with the disease the opportunity to lead full, productive lives by funding research and drug development, promoting individualized treatment, and ensuring access to high-quality, specialized care.MORE Email ****@cff.org
Facebook 243.8KTwitter 31.3K Domain Authority 39 Get Email Contact Read Now